Monday, December 28, 2015

Update on Mia

For the last three years this is what doctors have told me:

Geographic tongue is benign. It means nothing.

Your daughter's behavior has nothing to do with what she eats.

She doesn't have any allergies.

And then I found Mindful Pediatrics and Dr. Roy and his wisdom:

Geographic tongue is usually a mineral deficiency.

Let's do some blood work. 

She probably has anemia. Children should not be tired and irritable.

We need to get her some magnesium. Her anxiety level is telling us something is wrong with her neurotransmitters.

She most likely has Sensory Seeking Disorder. Let's get her some occupational therapy.

Let's test her ferritin, not just the iron in her blood. If she's not storing blood this will make her tired, irritable, prone to tantrums, hard to motivate, hard to discipline and anxious. 

Let's test her blood for food intolerances. Most mainstream pediatricians don't believe in this, but I have found that it is very valuable.

We need to check her zinc level. If she has food intolerances, her zinc will be depleted. And she will be irritable, tired, anxious, etc. 

Mid-November:   He started her on Relax Max, multivitamin, fish oil, probiotics, dairy and gluten 
                             free diet and ordered 7 blood tests

December 1st, Lab results:

Zinc deficiency
Ferritin deficiency
One of the most clear cut blood tests for food intolerances he has ever seen: gluten, dairy, soy, eggs

Started egg, soy, dairy, gluten free diet for six months.
Zinc supplements.
Iron supplements.

28 days later: A clear tongue with some very small cracks and a few raised taste buds. Her tongue is healing big time.

Anxiety levels down, but still above normal.
Hyperactivity about the same, but able to self regulate and calm down better.
Irritability way down.
Happiness up.
Way less crying.
Way less tantrums.
Itchy skin lots better.
Dry skin a thing of the past.

The diet has been pretty difficult. Most restaurants use soy bean oil we are finding out. Breakfast is the hardest to figure out since eggs are out. She is eating a lot of rice, rice milk, gluten free crackers, chips, etc made with rice. Any baking I do with gluten free flour is rice-based. I'm a little nervous she will develop an intolerance to rice so I am trying to substitute other things but she is not a meat or vegetable lover and I have my own issues with meat as well. I don't think we should kill animals if we don't need to! I'm not really an animal lover, I just have a hard time with it.

We have found corn can be a problem if she eats too much so we limit that to twice a week at the most. Corn syrup is in just about every processed food. She has been drinking a lot of juice because it masks the taste of the iron, which is in a liquid suspension. They went years without drinking juice except for fresh squeezed OJ. 

But it is all worth it!!!! She is doing so well and hasn't even started occupational therapy. We are excited about learning ways to help her seek stimulation in appropriate ways!

Why am I putting this in the family album? First and foremost, Mia will probably have to be dairy and gluten free for all of her childhood. And she will ask why. And I will show her this post. And she probably will still not like it. And neither will I. But it is what it is. When life gives you lemons, don't make lemonade with high fructose corn syrup, or meringue or lemon cake. Make a little lemonade with plain old sugar and then relax and drink it all up because it's gluten, soy, dairy, egg and corn free!

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